“Today Samantha is off medication and her blood sugar has normalized! We are so thankful Cook Children’s Hyperinsulinism Center was there for us, cared so much about our baby and was so close to home!” – Samantha’s mom
Samantha was born on her due date, March 8, 2010 and was expected to be healthy and a “big baby”, though she actually arrived at just 5 pounds 11 ounces. After her first feeding the hospital realized something was wrong and Samantha was quickly transported to Cook Children’s Medical Center by the Teddy Bear Transport Ambulance. I was also released from the hospital to head to Fort Worth the same night.
Samantha was then diagnosed with Hyperinsulinism and Pneumonia. She had a central line placed in her head for a concentrated IV form of sugar. She cried often and would not eat. After a swallowing evaluation they started her on Prevacid to help her eat more. She was also found to have a broken collar bone from her delivery. She was started on Diazoxide, a common medication for hyperinsulinism. She had a G-Button installed for her to be fed just in case she wouldn’t eat. Dr. Thornton wanted Samantha to learn to eat before discharge, so the next 5 weeks were spent in the hospital with feeding specialists.
Two weeks after going home, I woke up to Samantha having a seizure. My husband, his sister and I rushed her to Cook Children’s Medical Center. She was admitted with a low oxygen level and had tests run including a spinal tap. She was swollen from water being around her heart. She was found to have a side effect from her medication leading to an enlarged heart and pulmonary hypertension. During the two week admission she was switched from medication by mouth to injections.
We finally got to take our baby girl home, though we still had to wake up every few hours for feeds, injections, blood sugar checks and document everything for Dr. Thornton. This continued for six months to a year.
Dr. Thornton’s hyperinsulinism team helped us learn how to keep her blood sugar at a safe level. For a year, we continued to return to Cook Children’s for safety fasts to monitor her blood sugar and wean her off the medication a little bit each time.
Today Samantha is off medication and her blood sugar has normalized! She is the smartest, sweetest kid ever and loves to help people and make them feel better. We are so thankful Cook Children’s Hyperinsulinism Center was there for us, cared so much about our baby and was so close to home!
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