“Tanner is able to have stable sugar levels due to Dr. Thornton and Cook’s Children’s Hospital for having a Hyperinsulinism facility. I can truly say that they saved my son’s life.” – Tanner’s Mom
Tanner’s journey with Congenital Hyperinsulinism began on September 23, 2017. Tanner was born June 7, 2017 with hypoglycemia that was primarily diagnosed as a result to possible Gestational Diabetes late onset. Tanner was released after 4 days in the NICU with a sugar level of 45 and we were informed it would increase on its own. After multiple pediatrician visits due to signs and symptoms of fatigue, excessive eating, reflux, and fussiness we were told it was first time parent fever.
When Tanner became 4 months old he had an ear infection which, resulted in lack of eating. Tanner became completely lethargic and we rushed him to the closest emergency room. Upon arrival, Tanner had a sugar level of 24, and we were rushed to a children’s hospital for the next month of his life. There we saw many types of specialists, constant venipunctures, IV’s, NG-Tubes, glucose tablets, injections of Octreotide every 4 hours, and Diaoxide that caused extreme fluid retention.
Finally, we stumbled upon one Endocrinologist after Tanner’s labs came back positive for Hyperinsulinism and she knew we needed to be transferred to Cook Children’s Hospital. We would be evaluated by Dr. Paul Thornton, due to them not being able to stabilize Tanner’s sugar. Dr. Thornton himself took time out of his busy schedule to have a one on one phone conversation with me regarding their facility, treatment plan, and what was in the best interest of my son. Upon arriving, the Hyperinsulinism team began to work on Tanner. His sugar was 30 and he was currently hooked up to constant NG-Tube feeding and IV D20.
Within a 3 week stay at Cook Children’s Hospital, Tanner underwent a PET-Scan, PICC Line Placement, Pancreatectomy, and G-Tube placement. Tanner was able to leave on a treatment plan that was reasonable. Tanner is neither Focal nor Diffuse, he does have one genetic mutation. His Pancreatectomy was unsuccessful because there were no focal lesions. His treatment plan is two Octreotide injections at 8am and 2pm, blood sugar test every 3 hours, feeds every 3 hours of Enfamil AR and Sol-Carb, and overnight feeds through G-Tube of Sol-Carb and Beneprotein from 8pm to 8am. Tanner is able to have stable sugar levels due to Dr. Thornton and Cook’s Children’s Hospital for having a Hyperinsulinism facility. I can truly say that they saved my son’s life.
If you think this page contains objectionable content, please inform the system administrator.