Kase Eli's Story
"So, all our thanks to Dr. Thornton, his staff, Dr. Johnson and her NICU team and of course the good Lord above for answering our prayers." - Kase Eli's Mom
On November 10, 2015 at full term, my second baby boy, Kase Eli, made his arrival in Waco, TX at a whopping 9 lb 2 oz!
I could see panic in his father's face. Kase was struggling to breathe and his blood sugar was low. We spent 10 days in the NICU with sugar checks, an IV form of sugar and a nasal feeding tube. Then, I can only call it a miracle that Dr. Paul Thornton with Cook's Children's happened to be in a meeting with Dr. Wheeler. Dr. Wheeler was at the point of no other options and Dr. Thornton told Wheeler “Send him to me.”
Teddy Bear Transport arrived and we continued our journey. The hyperinsulinism team welcomed us and made us feel at home. With Dr. Thornton, we went over my life’s story of Type 2 Diabetes since age 12, his dad’s story and my pregnancy. Then, he asked me if I had ever heard of MODY. Never. He explained that MODY was a genetic form of diabetes caused by a malformation of the HNF4Alpha gene and we may have it.
We started Diazoxide, had a setback 2 days later of necrotizing enterocolitis, but 10 days later we were back at it. Sugars were coming up, IV dextrose was weaning and he was starting to eat more on his own.
Dr. Thornton mentioned installing a “g-button”, he explained what it was and why it was a good idea to have this. Kase's dad and I talked about it <2 minutes. This was NOT an option for us. We knew without a doubt our boy would be strong enough to eat on his own. See, both of our fathers passed away and were in heaven looking down on our boy and Kase had the two best guardian angels in heaven! We believed a miracle would happen. It did! Kase was eating enough to come home before Christmas!
Now over two years later, we are on a small dose of Diazoxide, check sugar once daily, he is where he should be developmentally and eating better. Kase should outgrow his Hyperinsulinism, but there’s no timeline. Once he does, he will have a 70% higher chance of developing Mature Onset Diabetes of the Youth.
So, all our thanks to Dr. Thornton, his staff, Dr. Johnson and her NICU team and of course the good Lord above for answering our prayers.
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