Sydney was diagnosed with stage 4 neuroblastoma 2 months after her 2nd birthday in 2003. For the next 4 years she endured 8 rounds of high dose chemotherapy, multiple surgeries, a stem cell transplant, radiation, 6 months of oral chemotherapy and over 2 and a half years of experimental immunotherapy. There were ups and downs for sure. But somehow, she made it. Today she still has no evidence of disease.
During her treatment, she participated in 6 clinical trials and traveled to 3 different hospitals across the US. We did not know it at the time but, during one of those clinical trials, the immunotherapy that she was receiving was discovered to greatly improve survival. In another trial, her response was so dramatic and so long running that her case was actually written up in the New England Journal of Medicine.
We do not know what made the difference for Sydney. I wish we did. But, what we do know is that it was the research that made the difference. We knew that it was families and friends fundraising at bake sales, car washes, and walks like this that made the difference. It was fundraising that funded the research that improved treatment options that is the reason that Sydney survived.
It is for this reason that we support the important neuroblastoma research that is happening at Cook Children's.
Please join us for another year and help us make the difference for another child and another family who just do not know that they have neuroblastoma yet.